About Me: Female, 26, Loudon, NH, member since May 2012
I have been sick for the past eight years, with no concrete diagnosis. I have had hundreds of tests, I've seen more specialists and tried more treatments than I can count. My primary symptoms are severe chronic fatigue, widespread myofacial pain, and generalized granulo
[More]ma annulare. I have been diagnosed with Hashimoto's disease, though treatment has done nothing to help or eliminate my symptoms. Right now my primarily complaint is my generalized GA, because within the past two months it has exponentially been increasing in the number of lesions, the spread of already existing ones, the skin discoloration and inflammation has become very severe.
Just a quick note to say hi! I have been searching the Internet to figure out what is causing my extreme fatigue, when I saw your post. I take adderall, too. The only thing is I cannot really sleep, I just lay still until my energy returns. Anyway, your post reminded me of an article written by Dr. David Rye from Emory Unniversity in Atlanta, a very respected neurologist. I participated in his study for finding the gene associated with Restless Leg syndrome. I see that he is now studying Hypersomnia, it seems like a reasonable thing to look at. If you google him you will find him and his research. I hope this helps.
Just a quick note to say hi! EmilyC88--hello my friend.I just joined so I could communicate with you. Read your post yesterday. I too acquired cfs at 16. I am 45 now and have been taking Adderral about 3 years. I too have developed a high tolerance. I take about 120 mgs a day but this gives me only about 4-6 functioning hours. I had to quit work and am now looking at longterm disability. How are you doing? I'm very concerned for you as I too feel scared but I am much older and have some financial support from my husband. Have you tried weaning off Adderal? I'm terrified to do so as I will be bedbound. Please let me know how you are surviving. You are not alone...We can get through this together. Truly , Keryn
Thinking about you and wondering how you are today.CFS is a boggling illness, but you can make something out of the rest of your life. Please don't give up! I understand the depression. I've had it. It does get better with time.
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