Thanks! I am so sorry your 15 year has it also. So far neither of my two sons have this problem. I think I will continue to manage my pain without the medications. It seems as long as I know that I can not apply any pressure to my left side or be mindful to not clench I can manage not to have an episode.
Thanks again - it is comforting to know we are not alone....
Deb, I am interested in getting Dr. information from someone who has had good luck with their physician. I have had TN for 20 years and not had good luck with diagnosis. I live in Ohio about 40 miles east of Cleveland - are you able to relay who your Neurologist is?
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