MY DAUGHTER IS ALMOST 13 YRS OLD NOW. SHE WAS DIAGNOSED AT 7MONTHS WITH AN ORBITAL LYMPHANGIOMA. MY NAME IS STEPHANIE MY NUMBER IS 706 402 6020 IF YOU WOULD LIKE TO CALL ME. I HOPE YOUR DAUGHTER IS DOING WELL.
Just a quick note to say hi!
my 4 yr old grandson, also has lymphangioma in his eye socket. A pediatric surgeon removed 90% when he was approximately 2yrs old. However, because 10% remained, that now has grown back to even larger size than b/f the operation.
The doctors suggest a "wait and see" approach.
My daughter takes her son to the Hamilton Eye Institute here in Memphis TN.
please let us know if you have been successful with another approach.
thanks in advance.