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whoa! We've had the worst little storm here this morning and I've been hurting since yesterday! Worst pain I've had in a while. But it is easing up, so it must be gone!

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About Me: Female, Youngsville, LA, member since Jun 2012

I was diagnosed with Chiari 1 Malformation at age 14 and had my first PFD at age 20. I had daily migraines, visual disturbances, clumsiness, numbness in hands, ringing in ears, pressure in the back of my head and neck- pretty much the classic symptoms. I had surgery bec ... [More]

Interests: Chiari Malformation type 1, Arnold Chiari Malformation 1

Best Answers: 1

Top Answerer:

Neurology

Feb 05

You are a truly remarkable person. I guess right now I am a little bitter about my situation. A year and a half ago at this time I could conquer the world. Now I feel useless sometimes. This past summer I couldn't even take my daughter to the amusement parks with my fiance because I could not withstand the heat. I am very lucky and have a great job - I just got my degree in October - which would allow me to gain an even better salary, but with the Chiari, central vertigo, and POTS - I have been on disability from June- late August and now from late December to present time. I guess I am just frustrated because I want to get back to work - I am afraid of losing my job and I want to be the mom my little princess deserves. Hope for some good news with my tilt table test today!

JCappiello

Feb 04

Wow... just reading your profile and all you have been through and you are truly one of the most positive people I have ever seen. I hope a little bit of that optimism can rub off on me!! ;)

JCappiello

Feb 04

Thank you very much - she is 2 years 7 months now. A lot bigger then that now =)

The_Marine_Corp_Brat

Nov 20

Happy Thanksgiving! I hope you have a wonderful pain free Thanksgiving! Give my baby lots of kisses! :) ((((HUGS)))) "The Marine Corp Brat"

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