About Me: Female, 69, Cape Coral, FL, member since Jul 2012
Hi...I am a semi-retired RN, originally from New York. I live in Cape Coral with my husband....I have 3 sons who all live in Florida with their wives and each have 2 children. I was diagnosed with papillary cancer on June 4, 2012 and had a total thyroidectomy at that
[More] time. My surgeon referred me to a local endocrinologist who explained the treatment plan (Low Iodine Diet, Thyrogen and RAI ablation) It all sounded pretty straightforward and he said I would be done by the 4th of July! Well, a week later I called the office and was told that the Thyrogen is on back order...no idea when it will be available...this is the 6th week of being on the low iodine diet...my husband and I spoke to reps from Genzyme, but no help there....office nurse from endo's office told me yesterday "don't hold your breath"! I feel abandoned and no idea where to go from here. I desperately want to see another physician but don't know how to go about this, or even if it is a wise idea.
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