I had twenty years of flushing just like you which had become hourly day and night. I had the million dollar work up just like you at Mayo, Cleveland, and NIH. I had the events right in front of many doctors and not one could tell me what was going on. Recently I learned from the internet that these events could be from food allergies. I went on an elimination diet, especially tree nuts gluten soy diary. Immediately my symptoms subsided. They are virtually gone now after a month on the restricted diet. What was happening to me was anaphylitic attacks (not shock).
Lauren...I was reading your post and was wondering if you have had the Gardasil, HPV vaccine? There are stories similar to yours on truthaboutgardasil.org. If this is the case, please contact the moderators for guidance. good luck and please keep me posted.
Just a quick note to say hi! If you are still having the flushing ask your dr. about seeing a endocronologist....I had the exact symtopms and tried to get an answer for years turned out to be medulary thyroid cancer. There is a marker called calcitonin and they can check via blood sample....calciton stops the body from releasing heat causing flusing. Take care
Lauren81....are you still posting on medhelp? If so, I would relly like to communicate with you regarding carcinoid. Hope you are doing well.