Have an undiagnosised chronic illness. Blood pressure spikes, pain below sternum, especially worse with bending. Also pain on left side of body with and without blood pressure spikes, it includes left side of face, neck, arm and sometimes side and left knee.
So you still have not received your tilt results? Some days for me are good, others are awful. For example, the first day of research my heart jumped from 70 bpm to 140 bpm while on the tilt table, and my carbon dioxide was very low. However, the second day on tilt, my heart rate only increased by 30 bpm and my carbon dioxide was normal. As I've probably stated before, symptoms of POTS vary daily.
Anyway, I heard the same from doctors about my symptoms. Don't let them get in the way of you taking care of yourself. You know when something isn't right, so brush it off and press on the best you can.
Below is a site with a list of recommended physicians who are knowledgeable about POTS and similar conditions. Let me know how else I may be able to help.
Again, where are you located? I may be able to find a doctor, if you have not, who can help.
As for your question, POTS, Hyper and other types, can cause endless symptoms. I have had the head pressure, along with the pallor and excessive sweating. I don't want to say for sure that your problems are due to POTS, but to me, anything is possible with this illness. And BTW, most of us do look sick. lol
My main symptoms are: rapid heart rate, high blood pressure, and shortness of breath upon standing. I also have: difficulty with stairs and exercise, leg pain, blotchy skin, tremors, IBS, chronic fatigue, low carbon dioxide, poor memory, increased sweating, etc. POTS symptoms vary greatly. Hyper POTS is determined by an excessive amount of norepinephrine upon standing.
I also used to be very active. I played soccer and softball for nine years. Now, all I can tolerate is swimming, and climbing, lifting, bending, walking, showering, blow drying my hair, etc., are challenging. As for treatment, I am on a beta blocker for my heart rate and on Losartan for high blood pressure. I make sure to stay hydrated, avoid triggers, and get plenty of rest.
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