Just a quick note to say hi! I have a son that was diagn. with 1q44microdeletion, His name is Tanner, he's such a joy, he has had to go through a lot in his life. He just turned 7 years old and is doing amazing. I thank God everyday for giving him to us. I too have lots od answers and have not found anyone with the same diagn. that we have. Tanner was the 31st person in the World to be diag. with this. If you have any information please help me. Thank You!
My name is Katie from Houston, TX. I have a son named Robert with the same chromosome 1 deletion (1q42-1q44). He was diagnosed in 1990 at Hermann Hospital / UT Genetics. Please respond to this email. I have not met anyone with "Robbie's Syndrome." Please email me at ***@****.
Not a member of any community
Add this user as a friend
Are you sure you want to delete your ?
You will no longer be able to add new data to this tracker.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.