Just a quick note to say hi! I have a son that was diagn. with 1q44microdeletion, His name is Tanner, he's such a joy, he has had to go through a lot in his life. He just turned 7 years old and is doing amazing. I thank God everyday for giving him to us. I too have lots od answers and have not found anyone with the same diagn. that we have. Tanner was the 31st person in the World to be diag. with this. If you have any information please help me. Thank You!
My name is Katie from Houston, TX. I have a son named Robert with the same chromosome 1 deletion (1q42-1q44). He was diagnosed in 1990 at Hermann Hospital / UT Genetics. Please respond to this email. I have not met anyone with "Robbie's Syndrome." Please email me at ***@****.
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