About Me: Female, Eau Claire, WI, member since Jan 2008
I was diagnosed with Multiple Sclerosis nine years ago. I now have SPMS or possibly PRMS. I have been treated with ALL of the available FDA approved treatments and am now seeking help with alternative treatments with help from an immunologist. As of July, 2008 I am n
[More]ot on any disease modifying treatments, but we are looking for a new drug so I can continue to do all I can to fight this disease.
I have five children and a beautiful granddaughter, and I am married with three step-children. I am well-versed in the challenges that come with trying to be a wife and mother while living with Multiple Sclerosis.
I am 98% bedridden at this stage of my illness. I suffer from severe fatigue, weakness, vertigo, and a Central Pain Syndrome - which makes it nearly impossible to be up and about - even in a wheelchair. I like to find out as much as I can about available treatments, side-effects, and am always hoping for a cure! I believe that there will be a cure sometime in the next few decades.
I am a compassionate woman, a good listener, and love to meet others with issues that are common in every day life when dealing with an incurable disease. I have much experience with MS drugs and in living with the disease in general. If I can help someone that's hurting or afraid it makes me feel I am living my life to the fullest.
Thinking of you!!! A member today posted a question about Mitoxantrone. You came to my mind immediately and then I remember how long it's been since I've reached out. I'm very sorry and sure hope this note finds you in a good place. Wanted you to know I was thinking of you and sending you thoughts and hugs...-shell
Thank you friend. I was thinking about you. I look forward to hearing from you when you are ready. No pressure w/getting the page up. Do what you can, that is all we can do. Glad you have your note! ttys, - Shell
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