Just a quick note to say hi!
was doing some research on my son who has this but other conditions caused by an event andi saw your post and noticed it is 7 years old. my son was flown by helocopter at 2 months of age to CHOP where they did not expect him to survive. he was in picu for a month and was sick for most of his life. he is now 12 and blessed. i am almost afraid to ask about your child but could you please let me know. my son still has all of the diagnosis your son did 7 years ago. thanks and God blees you.