About Me: Female, 23, Dayton, OH, member since Oct 2012
Hello! I am currently a sophomore in college pursuing a degree in Rehab Services. Last year, after more than six years of symptoms, I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS). It is a very unheard of and often misdiagnosed nervous system disor
[More]der that prevents the body from being able to properly adjust to the pull of gravity. My most frequent symptoms are: rapid heart rate upon standing, shortness of breath, heaviness in legs, fatigue, gastrointestinal issues, brain fog, and inability to exercise. In less than a week, I will travel to New York to participate in a research study. After that, I hope to have more answers about my condition, as well as find more effective ways to raise awareness.
Just a quick note to say hi! Wondering how you are doing and what ended up with your trip to New York. I am going to be going to the Cleveland Clinic in a couple months and hope to have some more answers.
i dnt kno wat 2 sae buh m jst 18 n i feel this change in gravity stuff has sumthing 2 do wid my symtoms....
i feel so scared n panic attacks, i feel hungry all the tym n burp most of the tym n m i did sum tests n evrythin was normal no reason at all but still i feel sick....
i used 2 liv in hilly region n den came 2 the plains 2 stdy in collge so i guess m havin this prob sumtyms i feel cold n go 4 my pulse but it seems normal but sumtyms it jst raises rapidly i feel sumthin stuck lyk in my chest in the
I live in Michigan, the metro detroit area. I went to one U of M specialist and was totally disappointed. I recently went to an electrophysicist? that someone recommended. I am waiting for the results from tilt test. But I think I did fine that day. Some days BP isn't as bad, especially when I am on BP meds. Then days like today are awful. I called them 2 weeks ago when I had a bad episode and they said go to primary they don't think this is related. Primary says symptoms don't make sense. I don't care if they don't make sense, they just are. I know this is something I cannot cure myself but don't know where to turn. Some days I feel like what ever this is, it is going to kill me. I have even thought of making appt. for Mayo in Minn. Where ever.
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