Age 67 - see HCV history below....went on 6 months of solavdi/riba (march-sept. 2014) and am now HCV free. Was on the transplant list, still am (see the status below) but docs telling me that I am doing so good liver wise that if I continue in this direction they will
[More] remove me from the transplant list....decision to be made sept.2015.....keep your fingers crossed for me.
66 - HCV - HVL 100M/++ Genotype 1 / Meld 13 / ESLD / Stage 4 w/decompensation, level moderate. On TP list. Did 6 mos. of Sovaldi/Riba and they tell me I am HCV free. Am a Writer/Artist and a perpetual Optimist. Love music...was in a band...a couple really and taught dance... Am a constant reader....Since childhood my mind never sleeps even when the body does, sleep to me is a waste of time. I love, love, love the ocean, traveling, exploring, Life, puppies, pandas and horses and of course my family and friends.
Have never met a stranger.... like meeting people and learning about them...enjoy their stories....if you listen you learn so much. Love open thinkers who believe that just by believing all is possible. "Thought transcends matter".......i.e., therefore......positive thoughts equal the strength of the will to transcend reality".
Docs tell me I am HCV free after 25 years and dozens of protocols. I was offered a liver in October and due to a folly of day...was unable to get to the hospital....had to meet with the head surgeon of the transplant unit a week later.......when he came in the room he asked where the patient was.......I said it was me.......after talking to me for about 15 minutes he did an exam and then looked at my file and said I shouldn't have even been called for the tp.
That the tp unit didn't have the updated labs, so they made the decision based on my MELD that had been 18 when on Sovaldi/Riba..... but the updated labs indicated it was now 10. He said he was shocked when I said I was the patient because I was bubbly,had normal coloring, eyes were clear, physically active to the point that was surprising to him...that I clearly had no brain fog from the questions and responses I had peppered at him after he talked to me. The fact that I was independent, driving and working part-time plus being a full time grandmother.
He said he was going to keep me on the tp list but list me as inactive for the time being but would confer with my hepatologist every 3 months and watch my MELD scores and other tests that I would be having. I saw my hepatologist on Monday of this week (12/1) for a upper GI and he said I had no varices and all looked well and he said to me...you know...you really might be able to turn this around.... So all you can is hope and believe. Wish me luck. Stranger things in life have happened. Think positive thoughts...erase all negativity from your minds even in the most troublesome days....negativity invites bad things in to your mind and body. Positivity.....real positivity plus passing it forward and helping others will bring you rewards and peace.
"I did Sovaldi/Ribavirin for 6 months and I had to deal with anemia....big time. Almost had to have a transfusion. You need to eat green leafy vegetable, beans, legumes...foods that are high in iron but not too high as to affect your li..."
"I have been on the liver transplant list over a year and a half. In September I got called in for a transplant after a year and due to family circumstances I was unable to get to the hospital to get it done (long story) and had to meet..."
Hi Heart. How are you. I have not been on for awhile, because of alot of things. Whats happening in your life. You know that I dont go on the forum so this is my way of keeping in touch. I am still virus free as of December 18. I hope you are ok. let me know. If you want to. Love ya Blue
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