Just a quick note to say hi!
Our ped told us that she truely felt that it was nothing to worry about but if it would make my nights more restful then she would do what needed to be done to make sure....Kassidy has an EEG scheduled on April 16th and a neorology appt on May 7th...Ill keep you up to date and in our prayers.
Just a quick note to say hi! I have a question..Does Jude do any of these movements while sleeping? That is one thing that I wonder about the PNKD...if it is an involuntary muscle movemnt, and the brain is fully functional while sleeping, wouldnt the muscles contract then too? Do you know anything about this?
I ran out of space on the other note,,,,, I could almost say she does it when her mind is not occupied....I am excited to finally find out exactly what is going on....I have felt it has been more than just excited movements for a couple of months now, since she started making an odd face with the movements..............I would love to chatt with you......when do you plan to be back on the computer,,,,,maybe we could converse!!!
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