About Me: Male, 63, San Francisco, CA, member since Mar 2008
I was diagnosed with cirrhosis in 2007 caused my hepatitis C. I treated with interferon +ribavirin but did not respond to treatment. In 2009 my cirrhosis decompensated, and I developed ascites and HE. I was then put on liver transplant waiting list. In June of 2011 I wa
[More]s diagnosed with liver cancer. 2012 one of the first 61 cirrhotics with HCC in ever to treat with Sovaldi in clinical trial. Unfortunately I relapsed after being undetectable for 47 weeks. The results of our study is the reason that Sovaldi is now approved for hepatitis C infected patients with liver cancer (HCC) awaiting liver transplantation.
In 2013 my cancer progressed so that I was removed from transplant waiting list because my cancer was outside of transplantation criteria. I tried 5 successive treatments but they all failed to get me back on the waiting list. I was told that without a transplant very soon I probably only had a few months to live. So I volunteered to try an experimental radiation treatment at our cancer center. The five radiation treatments successfully in downsized my cancer and AFP enough so I was able to get back on the waiting list and got a liver transplant Nov. 16, 2013. After my transplant I treated my hepatitis C for the third time and was cured at the beginning of 2014. I also treated my TB and was cured as well.
I am the co-founder of my transplant center's hep C support group and support others going through the transplant process as well. I am also a peer to peer liver cancer (HCC) counselor with our cancer center for people who want to talk to others who have been diagnosed with liver cancer.
I am very grateful to all of the doctors who didn't give up on me and literally saved my life. I am also very grateful to my donor family who gave me the gift of life. I now have a healthy 38 year old female liver that allows me to wake up and open my eyes each day. :-)
Howie, congratulations on your SVR! I am thrilled for you.
I haven't been posting most of this year since my husband fractured his right femur (badly) and his right humerus last Thanksgiving. He survived the surgery but had serious complications following. But being the fighter he is, here we are 18 weeks into the Harvoni treatment looking forward too EOT. He is still wheelchair bound but hopefully once he completes treatment, things will improve with the leg also.
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