I was diagnosed with cirrhosis in 2007 caused my hepatitis C. Tried interferon +ribavirin treatment. Did not respond to treatment. 2009 decompensated, with ascites and HE being my most common issues. Put on liver transplant waiting list. 2011 diagnosed with liver cancer
[More]. 2012 one of the first 61 cirrhotics with HCC in ever to treat with Sovaldi in clinical trial. Unfortunately I relapsed after being undetectable for 47 weeks. The results of our study is the reason that Sovaldi is now approved for hepatitis C infected patients with liver cancer (HCC) awaiting liver transplantation. 2013 failed 5 cancer treatments. Removed from transplant waiting list.Told I was terminal. Tried experimental radiation treatment which was successful in reducing my cancer enough so I was able to get back on the waiting list and got a liver transplant Nov. 16, 2013. Still recovering from my transplant. Currently co-leader of my transplant center's hep C support group. Provide support and encouragement based on my own experiences to pre & post hospitalized liver transplant patients at our transplant center.
Since I am at high risk of my cancer recurring I am now taking an immunosuppressant that has anti-cancer properties and will start treating my recurrent HCV in August with Sovaldi, Olysio + Ribavirin to reduce the inflammation of my liver, inflammation may be a factor in liver cancer (HCC) recurrence which we want to stop as soon as we can. An added benefit would be to finally cure my HCV infection of 45 years as well.
I forgot to ask at some point thru all this did you have any trouble with your pancreas. I have had knife sharp pain in my left front side and especially after I eat. From what I researched this could be my pancreas as I've treated for diverticulitis and no relief. See primary in January and they are going to have to do something. I don't look forward to coming off the morphine if and when they decide to transplant as its part of the criteria here in Okla. Which I don't understand. Your incision was something else I expected to see the Mercedes but I suppose with the hernia repair. I had major hernia repair over a yr ago and it was not fun...yikes. Take care for now..Linda
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