I was reading some of your post (but not all) and was wondering if you have headaches with everything else that is going on? I just found out that I have Chiari Malformation 1 and it comes with every symptom that you have, which I also had...I had my thyroid removed 10 years ago so that is part of my problem also...But, is is amazing what CM1 does to you and doctors never firgure this out until you have a brain MRI that will show this...That is how I found out and it finally explains how and why I have felt the way I have for years!!! It's totally possible that this is not what you have but it is worth looking into! Hope you figure it all out (unless you already have which would be great)!
Wow - are medical hx are similar. I had Lyme (dx at Columbia U) 10 years ago, hypothroidism, high RH factor, high Ca, persistently low vitamin D, fatigue, balance problems, flank pain, memory/cognitive concerns, and neuropathy. All that and I still am able to work full time and have a reasonable life - but it is getting harder. I have seen multiple PCPs and 2 endo doctors with no one able to piece it together. I have an appt at Mayo next month. I would love to learn from your experience - if you have any new information to share.
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