About Me: Female, 53, Kingsburg, CA, member since Apr 2008
I'm a mother of 2, Any week now I'll be a grandma for the 2d time. Love weight lifting and exercising. Known as a health nut by coworkers when really its just been my lifestyle since my early 20's.
[More] Determined to fight this virus.
I'm waiting on test results now. They did ANA (that's one they do at beginning of TX, also), smith antibodies and DSDNA antibody tests. Hoping the ANA comes back positive and the others negative as the smith and DSDNA antibodies indicate real lupus autoimmune disorder, not curable. I have low platelets and some weird allergies from TX but thank god, not the muscle and joint pain that so many lupus sufferes get. Drug-induced lupus does eventually go away, though not in a predictable time period. I hate to post on the open forum about autoimmune disorders from TX because it gets people so upset. Who would think I'd be hoping for drug-induced lupus just for the hope of post-TX problems clearing up? Funny life.
Sorry your post about pain after treatment did not generate anything helpful. Continued aches may be due to drug-induced lupus. Simple to diagnose with bloodwork. Get an ANA test done and if it's positive follow up with a histone antigen test. If also positive it is drug-induced lupus. Good news is that it nearly always eventually goes away, though it might take years.
You are correct, it is a battle to remain positive and some of us do become familiar with being depressed. I know I have. But thanks to the helpful advice I've found here, I feel equipped and braver for when willy begins his tx. This virus is all encompassing and draining if you let it, but thanks to reading ppl's words of svr really keeps me going. Wilko has to wait until January for more info on univ trials and the wait is excruciating sometimes, it seems like tx is a myth. it sure does leave lots of room for getting depressed!
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