About Me: Female, 36, Carrollton, TX, member since Feb 2013
I am a 36 year old female that has been ill since I became pregnant at 23 years of age. When I was 6 months pregnant I found out I had melanoma on my right breast and abdomen. After having it removed, I started having severe back pain, they told me it was from gaining
[More] weight. Pretty soon, I couldn't put in pressure on my left leg or left side of my body. I had to wait to give birth before I could have an mri. Sure enough, they found a tumor at my L5S1. I had the baby in March and finally had surgery by August, they removed the tumor which was a shwannomma tumor. They said they were hereditary but I'm the first that I know of. I was good for a whole 6 months after the surgery. Till scar tissue grew in the place of the tumor, I started getting leg spacticity. Where my leg would twitch and I couldn't control it. After that the pain came, and I entered a nighmare scenario of going from one specialist and surgeon to another. After 8 years of chronic pain, I had another mri done and they still said it was scar tissue. I finally found a neurosurgeon that would listen to me and give me surgery. I told him it was more than just scar tissue, when you know your body, you just know when something isn't right. We went in for surgery and he removed 3 shwannomma tumors ontop of the scar tissue. Soon after that I got diabetes. It was really strange. I was 130 lbs on month and 2 months later, I was 180 lbs. On top of that, I had swelling above my clavicle bone. Here I go again. I started having staph kidney infections, that of course the urologist missed and when I went to the hospital in agonizing pain, they found that the urologist had missed calling me about the staph infection and I had it for at least 6 months. I strated getting night sweats that drenched my bed. Even during the day, I would strat sweating like I just ran a marathon. Besides that I always had a lump in my throat, high blood pressure (160/100) My heart was beating so fast, none of my medicine was working. Now the swelling above my clavicle has gotten huge and I have more symptoms. I forgot to mention a fever for 2 years straight. Now I'm getting small cherry sized lumps in 5 different places. I also have granulomas on my lungs which at first they thought was lung cancer but now I'm at a stand still not knowing where to go next.
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