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About Me: Female, 46, member since May 2008

I'm Molly.  I am 41, and the mother of 8 beautiful children.  Julie (19), Ethan (16), Hayden & Cameron (15), Mary (14), Jordan (11), Daniel (10), and Sophie (8).  My youngest 6 are all adopted, but all 8 of my children have special needs. ... [More]

Julie has severe dysautonomia.  She is currently on Midodrine, Florinef, Ritalin, and daily hydration therapy through her PICC line.  She is also hearing impaired.

Ethan has been in remission for leukemia for 8 years.  He is extremely gifted, and takes Adderal for his mild ADHD.

Hayden and Cameron are my first adopted children, and they are fraternal twins.  Both have Cystic Fibrosis.  Both use nebulized Pulmozyme and a mechanical percussor twice daily, and take enzymes with each meal.  Additionally, Hayden has Aspergers Syndrome.

Mary is 14 years old.  She is diagnosed with Obsessive Compulsive Disorder, Post Tramatic Stress Syndrome, Selective Mutism, and Tourette Syndrome.  She is being treated with Paxil, Klonopin, and Pimozide.

Jordan is 11, and suffers from many disabilities.  He has a pacemaker because of his severely low heart rate.  Prior to his pacemaker his heart had stopped at least five times.  He also suffers weakness, and uses leg braces for walking.  He has several learning disabilities, and hypothyroidism.  He takes Ritalin, Levoxyl, and Motrin.

Daniel has classic autism, and repeats nearly everything he hears.  He also has Lennoz Gastaut Syndrome, which causes frequent seizures that are difficult to control.  We're still working on finding the best medicine cocktail for him.  Right now he is on Lamictal and Klonopin.

Sophie was the 3rd daughter born to her family.  The older daughters were immediately put up for adoption upon diagnosis of Rett Syndrome.  Sophie was also put up for adoption shortly after her birth, because she was found to have a mutated MeCP2 gene.  If we hadn't adopted her, she would likely be living in the same orphanage Mary had lived in for the first 3 years of her life.  Sophie developed normally until the age of 2 1/2, when she began to succumb to the many symptoms of Rett Syndrome.  She has frequent complex partial seizures, and hasn't spoken a word since her 3rd birthday.  She has very little use of her legs, but occasionally walks around with the aid of leg braces and walker.  She is being treated with Tegretol, Lamictal, and feedings through her G-tube.

My wonderful husband and I each have our own difficulties to deal with as well.  I have a mild form of dysautonomia that is well controlled with Florinef.  My husband has developed panic disorder, and takes Xanax.

To better understand Rett Syndrome:
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