About Me: Male, Cupertino, CA, member since May 2008
Brain/fog dizzy persistent headache (6/06 to 2/07) sporadically to date
[More] Sore/burning Butt (6/07 to present, gradually worsened over that time)
Cognitive Impairment: brain fog, clumsy (2-08 to present)
Bad floaters (4/08 to present)
Visual Snow (4/08 to present)
Parathesis, allodynia (3/08 to present)
Tinnitis (5/08 to present)
Esophagus/stomach pain (5/08 to present)
ALT strange (3/08 to 5/08 was high and then returned to normal 6/08)
Neuro Test Results:
1st and 2nd Brain MRIs w/o contrast (taken ~8/06 and 3/08, respectively w/o change, UBOs unremarkable), EEG, VEP taken 4/08, both normal
Blood work: std batery of tests all normal, liver panel normal, auto-immune tests normal. Complete viral testing: EBV and HSV-1 high, all other viruses, normal, Mycoplasma and C. Pneumonia high
Lyme Tests (4/08-6/08): ELISA (negative, twice). Western Blot negative/inconclusive (repeated with same results: IgM +, but IgG -, but -- by CDC, ). CD57 was low (42). All Lyme co-infections negative.
LLMD suggests Lyme, all other IDs strongly believe negative
ID suggests viral infection
Headache specialist suggests migraine for most symptoms
Just a quick note to say hi ! Thanks for the note... I was sort of worried about you. A CFS diagnosis is a bitter pill to swallow. I hope that you will read my journal entry about the history of CFS and politics.... because you'll need to know this and the potential problems that this could cause for you in the future. I hope you also checked out the healthcare pages in the EBV and fibro/CFS forums. There are treatments for CFIDS that involve supplements and some medications only. There are also NATURAL formulas that I actually prefer to antibiotics and antivirals... they give me herxing symptoms. If you want more info, send me a PM.
Hi, I wanted to check out your experiences with Lyme and some of your history is close to mine. I have parasthesias, neuropathy, floaters, migraines (only if on birth control pill?), tinnitus, fatigue, heat intol. high HSV-1 and positive IgM for Lyme on WB(by Igenex and CDC standards) but mostly negative IgG. One lesion of unknown etiology on several MRIs. I am trying to be brave and go ahead with PICC line antibiotics, but I'm struggling with the political aspects of my diagnosis. Any advice would be greatly appreciated and I was wondering what, if any treatment you have tried? Thanks!!
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