I am a mom to three lovely kids, and my youngest has medically complex IP. She is a sweetheart and generally happy, but she has had very serious visual complications, seizure disorder, CP, dental delay and global delay. She is four and just learned to walk, a huge milestone that we applaud daily. We live in the Boston area and I would love to hear from other parents who've been down this path. We focus on celebrating the many accomplishments and daily tasks of living that our daughter has mastered, but it is always a great support to hear of other families experiences. Any local or not so local resources that you have discovered, conferences or support services. Thanks so much! Lynne
oh she has laready seen so many doctors its rediculious. neurologist, genetics, pediatrician, and opthromologist. i am taking her to the hospital to have her admitted tomorrow, so they can do another EEG, because she is having sezuires even though they have upped her dosage twice.
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