About Me: Female, 64, near Houston, TX, member since Jun 2008
I was a part time document imaging clerk. In fact this is all I have ever done is sit in front a screen (PC or otherwise) and enter data of some sort. Hubby is very supportive of my pain. We are nearing retirement, but my pain has been so bad that I could not work and w
[More]as forced to quit after almost 12 yrs at the present place. I've been in pain off and on at least 10 years, but for the last 5 years it has been most of the time. I've had a laminectomy which did not heal and got infected which prompted more surgery. That helped only for a bit. Within a year I was back to spine orthopedic doctor for more shots but was told to lose weight and become more active. In 2007 I had a double fusion with a spine specialist. That went well and I began a weight loss program and exercise program with my PT. I lost 60 pounds because I wanted to be in good health. Well, I began having more pain than I've ever had before. My pain is specifically in the bottom of the pelvic area and the sacral area vertibrae.No one seems to be able to take care of this. My pain specialist had me on Lyrica and Cymbalta but I've gone off those and the pain was no worse. He did a myelogram which came back that I have arachnoiditis. I really do not know what that has to do with my pain. He sent me to a neurosurgeon for a 2nd opinion. He noticed the fused bone was growing into the spinal area and operated. Did not help. Did another mylegram/ct scan also showed arachnoiditis but he said there was loose bone next to one of the screws and operated. Now I'm 5 weeks after the surgery and I'm still no better. I think he should scan the pelvic area but says the pain is referred from my back. I think it could be pudendal nerve problem or another nerve entraped with a major muscle group attached to that ischial tuberosity. I'm miserable. It's been more than 18 months now in constant pain unless I lay down or recline. Cannot sit or stand. I think when I am sent back to the pain doctor they will at least to a trial for the spine stimulator. I've applied for disability.
Oh, and my father with dementia lives with us.
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