About Me: Female, 60, Ocean, NJ, member since Jul 2008
Artist/ Photographer MISDiagnosed over 12 years ago with FM, actually having 4 Lyme diseases (Babesia, EBV, Bartonella and Mycoplasma ) The Fibromyalgia diagnosis fits all my symptoms. Some days I think I'm a FM person with Lyme's Diseases.
We have to be our own medical advocates. Medical research is now my hobby. I am an amazing person trapped inside this unfamiliar body.
I paint showing the soul of the person, when I can paint. I will emerge, like I always do. I will be more grateful and enjoy life even more when those days are here, for as long as they are here.
I am a Video Gamer. I was Hardcore, top of my game until my hands and mind stopped working right. Now I just play co-op or solo.
Just a quick note to say hi! I also have Fibro and they are still working to rule out MS. I live close by in Brick where I grew up as a child. My family moved to Los Angeles in 1976. I got married and raised my family in Denver,
CO. Now my family is moving back to the Jersey Shore. So happy to be home. Wishing you many good days and strength to make it through the terrible flare days. I would love to add you to my friend list. I am new on here and my initial goal was to track my symptoms for my upcoming court date for Social Security Disability determination. But I am finding that this is a great place to get or offer support to others that are ill like us. Best Wishes, Rivergirl (Arlene).
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