About Me: Male, 34, Lisle, IL, member since Aug 2008
Hello I spent the first year of my life in the hospital with bowel complications. When I was released I still had bowel complication until the age of 11 but was not as severe. After that I started having complication with emptying my bladder and not being able to produc
[More]e sperm. So when I married me and my wife wanted to have children so I went and seen a doctor for the problems. I was 26 at the time when I found out I had tethered cord syndrom. The doctor told me I needed the surgery right away or my spinal cord would snap and I would me paralized. So the following week he performed the surgery. I never had any pain prior to the surgery but after the 9 and a half hour surgery and 3 weeks in the hospital I ended up a diffrent person. I have severe pain in the back of my left leg that burns in the muscle along with shock pains through out both legs and threw my feet I also have severe pain in my tailbone. And after the surgery I have no feeling in my genatal or rectum area I use a strait cathiter to urinate and use my incontinence training to perform a bowel movement. I no longer work and I just found out after two short years that my cord has retethered and I'm afraid that if I do the surgery again I could end up worse than I am already. Please let me know of any doctor that would be willing to review the OP report because I think there were mistakes made in my first surgery. Please let me know because I was a very athletic person who was working to become a police officer. And now all my dreams were flushed down the drain. I can bareley get out of bed now and I also take many medications for pain.
Just a quick note to say hi! My son had TCS too. They caught his when he was born with a host of other problems. His entire syndrom is V.A.C.T.E.R.L. At 4 months he had TCS surgery. He is 3y 9m old now. He has a prostetic leg also but he finaly walks with a pacer gait walker, only a few feet tho. He uses a catheter to urineate through because his bladder dont work from nerve problems cause of TCS surgery. He has a ostomy appliance to void for stool also. While walking in walker he has very little balance control and gets mad when you make him walk to long but walks on his knees for a few feet. His main way of getting around is crawling or scoot on his butt. He has great upper body strength tho and is very happy. Any tips on walking would be great. ***@****
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