About Me: Female, Quincy (Boston), MA, member since Aug 2008
Hey there - I am a 41 yr old female from Boston MA. I have been very happily married for 11 years and been with my hubby for 15. We have a 17 (almost 18!) year old daughter named Amanda, and a 10 year-old son named Jack. I live three houses up from the ocean - I coul
[More]d never live away from the water...
I have been sick ever since suffering an almost fatal viral pneumonia when I was 8 months pregnant with my son. We survived, however, I began having strange symptoms after delivering him. This began my journey of my "chronic, invisible illness". I have been Dxd and mis Dxd and re Dxd over and over...and was officially Dxd with SLE (lupus) this year. However, there is still serious neuro symptoms that need to be officially determined as either CNS lupus, MS or chronic viral encephalitis. Though, I am very grateful to finally have a Dx, there are still some underlying issues going on that I am seeking wellness for.
Though dealing with the chronic effects of this disease (and the meds to treat it) is a tough ordeal, I remain grateful in the fact that I am still here and am able to enjoy my wonderful family and friends.
An important aspect of my life is my strong faith in God, and I trust His plan for me.
I'm happy you guys let me hang around - you are all great!
Hey Lauri, I noticed you live in Boston. My daughter lives there. She loves it. Very different from Texas. She loves taking the T to work each day. I have a question. You mentioned social security. I am going through the process now and I have a friend also with lupus who is going through the process. She has been turned down twice now and has to go before a judge. She has had a heart attack and many other things happen over the years and still cannot get SSD. I am having heart issues (vasculitis) and other issues and I am about to get an answer (my first) in about two weeks. Was it difficult for you to get approved? Hope you don't mind me asking. It just seems like people can get it sometimes that don't really seem to deserve it and then others like us have a hard time. God Bless Thanks
Just a quick note to say hi! wow 10 years, thats along time. I've been sick for 10 months. had a postive ana and anti sm. waiting to get into a rheumie here and it takes for ever. I can't get in until Dec. (upstate NY). My gut is telling me i have lupus. I have so many systems. Fatigue, hair loss, joint and muscle pain, rashes (not on face), swollen glands in neck and underarms, i can't get over pneumona (2 months), in the last few weeks i have blood in my urine., lower back pain. I just don't know how you went 10 years it truely feels that long for me(lol). i read they think you have MS now too? i have a friend who was dx with lupus two years ago, but just found out it was MS all along. How weird are all these autoimmune disease!! Anyway i'm new on here wish you all the best and good luck
Lauri! Now that was the sweetest thing to say! Yea, MS is quite invisible huh? I was feeling quite good the night those were taken, and what would we do w/out make up and blowdryers! Keeping up w/the bleach is getting quite expensive...lol You have a great day lady! (((hugs))) Shell
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