I.m so sorry for your loss.My son was diagnosed@ 2 months. You can e-mail me @***@**** if you want. Duke University has done extensive reseach into Chiari and may be able to help you. Also you can contact NORD in Washongton DC(National Organization of Rare Diseases/Disorders)
I am not sure what to say other then i to have had my heart beating quicker and shorter breath but my dr said thats just from the babies heartbeat that your body is on double time. I hope this helps a little. Good luck