About Me: Female, 33, new brunswick, NJ, member since Aug 2008
married 26 year old.
we ended our first pregnancy at 22 weeks due to meckel gruber in february of 2007
[More] we tried again and became pregnant nearly a year later and this baby was healthy, yet we lost her due to my incompetent cervix at 23 weeks in may of 2008. we are so heartbroken, but carry on, because now we know we can have a healthy child. we love and miss our two girls very much.
Hey there, I have gathered 6 other women and we are at babycenter anytime you want to vent or listen in on what is going on there:)
There is a little bit more info on research there too.
Talk to you soon
That is crazy because I was just there yesterday. And I know the website you were venting about benotafraid, and I feel the same way. I thought about joining and not telling them but..... but the only reason I would have joined is to be with people that have dealt with this also. Oh and just to let you know that there are now 2 people including myself that are on my new board for Meckel Gruber Syndrome at babycenter.com
Are you on other forums??? I am also at babycenter.com and made my own board for Meckel Gruber Syndrome, but so far I am the only one of there, but there is soon to be 2 because I found another women that has dealt with this as well... soo.... if you want to go there and look for me its AngelPsMom. If not that is fine to, I will come here to talk:)
Its been 7wks since I lost my Angel to Meckel Gruber Syndrome, its been the hardest thing I have ever been through. I just found out monday what she died of. SO I also found out that it could happen again.
I feel so lost
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