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08/09

Hey Tania, how have you been doing? Sorry long time no write. I often think about you. It seems like you are the only person who I have been able to connect with on this site. I've been feeling the same. No better, no worse.....can't even get my pcp/neuro to listen to me. Just the typical struggles of a person with neurological symptoms!?!

CareBayer

05/09

Hi Tania, I was just thinking about you wondering how you are doing since I havent heard from you in a while. I havent been coming to the forums as often. I just needed a break, plus I have nothing to add or offer people since I dont know what is going on with me. I have been feeling alittle better though, but these past days it been hot. My parasethia's have kicked up a notch, but nothing I cant handle. My dr put me on primdone for the tremors but I had such bad side effects I stopped taking it. I hope all is well for you and I am still praying for you my friend. XOXO!!

CareBayer

03/09

I AM SO HAPPY TO HEAR YOU ARE FEELING BETTER!!! Hopefully the Predisone will continuing working after you have to stop taking it. Or maybe the dr can keep you on it for a longer period of time at a low dosage. If you havent been reading in the forums lately there has been a lot of talk of Devic's. Some of the members have found a lot of information on it. I thought of you everytime I was reading them hoping you were reading them too. I've been having my ups and downs. It seems like I am at a stand still in finding out what is wrong with me. My tremors are getting worse. My PCP and his office thinks I have axiety. They gave me a speech on how axiety can cause my problems. I tell them over and over again I was not having it at the onset of my symptoms. They are not listening to me.

CareBayer

03/09

Hi Tania, I was just thinking about you. Hope your feeling better.

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