My 12 year battle finally has a name. Autoimmune Small Fiber Neuropathy. It took several different doctors and many, many tests and a new, and really good primary doctor referring me to the right specialists!
[More] Not happy about the diagnosis, but at least IT has a name now and no one can tell me it's in my head. We still don't know the cause, but I do know the symptoms are not in my head.
Anyone reading this, and struggling to find out what is wrong, don't give up. It's worth the fight!
I could have written your posts on hashimotos symptoms. I was diagnosed in 2009 an have been having symptoms that are getting worse. I now have a sever B12 deficiency with still no answers. I was wondering if you have had anymore diagnosis with your symptoms?
Hi i saw that you were diagnosed with hashimotos & thought Id let you know you can treat it now, watching it is a dismal approach, please find out about this with Google as I did, and find a progressive doc. Good luck!
Hi, Glad you got a name to put to your symptoms. I just want to add that regarding Lyme disease, don't be too quick to rule it out. Actually, Lyme can present in quite a variety of ways - sometimes the only symptom you might have is just extreme fatigue. Sometimes it may be swollen joints or any number of other varied symptoms in any combination. Many people with Lyme never see a rash or a tick. The nymph form of the deer tick is as small as a pencil point - most people would not notice it if it were on them. I would continue to look for an answer because I'm still not sure you have one. Good luck to you!
It doesn't look like a lupus rash to me but you really should see a dermatologist. I have pics on my profile page of a rash. Not at it's worst but it's so hard to stay out of the sun in las Vegas, so I had a butterfly rash until I started covering my face. You should really see a dermatologist. Maybe it is a lupus rash, but looks a little different. A doctor should be able to give you more information.
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