About Me: Female, 49, West Saint Paul, MN, member since Sep 2008
44 year old married mom of a 5 year old girl. Working full time and juggling motherhood with work. I come from a big family, 5 other siblings (4 are sisters). They are my best friends and keep me anchored.
your co pay is great I hear its about $10.000 per treatment please let me know how the treatments go and hope this will put you in remission I hope if I start the treatment I may be able to gain some mobility back and I would like the cognitive issues to get better I am not working now due to the cog issues I work in a pharmacy and they are days I cant add 2 plus 2 together. goood luck on the ivig
HI IM Kathy I have been having issues similiar to yours I started off with numbness in feet that is now into my hands and up to my waist they diagnosed me with small fiber neuropathy witch is idiopathic that was 5 yrs ago and I am declining now need a walker and I am only 39 5 neuro's and stil no answers. new rheumotologist is re running lupus panel and did mention I may need ivig treatments can you keep me informed how yours are going I have really bad veins and iv access is poor even blood work is usually 3 sticks so hopefully they can figure something out for that if i need it. i hear it is a very expensive treatment but if it works it will be a relief take care
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