"Well, I am a 31 year old female that has been having myoclonic seizures for 2 years now. My symptoms started with burning and numbness in my arm that spred to both arms. I then started having a severe tremor in my right hand that only la..."
"I have myoclonus for 2 years now and have no clue what is causeing it. i have had about every test imaginable and have slight abnormalities but nothing diagnostic. Mine started in my trunk and moved into my neck. They will bend me over a..."
Hi I also have myoclonus (mine is spinal myoclonus) and would really like to connect with you on this condition. Mine has totally spread these last 2 weeks. Please feel free to write to me. auntlolo Take care. I understand what you are going through.
I found out that it wasn't a tumor of any kind. I eventually found a different neurologist bc he was closer to where I live, and he said that most of the time myoclonus is just idiopathic, doesn't have a cause that can be found. Mine get better and worse depending on the amount of stress I have, or how much sleep I get. I'm still not on medication, but I'm supposed to start Topamax next week to see if it will help.
I read your entry about your tests results, and I'm sorry to say I don't understand much of it either. Your doctor didn't explain it any further? I'm sorry you haven't been able to get a real diagnosis. It can be really frustrating, I know. Hopefully they will be able to figure something out at Mayo.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.