Go to babycenter.com
click on groups
enter Meckel Gruber
once you get there you can try to post a comment and then it will ask you if you would like to join the group,then just follow the steps.
If this doesn't work I will try to get you a direct link,if I can.
Let me know:)
Angel Peanuts Mom
There is a study being done at Mayo Clinic for Meckel Gruber and I was wondering if you were apart of it?? I just told my Genetic counselor yesterday that I wanted in, if I can help someone else not to go through what we have been through then I will do it.
Hello, I am so happy to hear from you its lonely be in this awful place. I just opened a new board on babycenter.com that is going to talk about Meckel Gruber Syndrome and well since I just opened it there are just two people including myself, I would love for you to join, I know there are more women out there that need us. Because I know that I need them. I would love to hear the whole story, and my whole story will be on babycenter.com.
Looking forward to hear from you
Angel Peanuts Mom
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