About Me: Female, 48, Mantua, OH, member since Oct 2008
I am a fellow Chiarian (person with Chiari) along with other Chiari related conditions. I have three children, all of whom have Chiari and related conditions. Four spinal surgeries, three brain surgeries, and one fusion later, we are (for the most part) doing well.
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I run ChiariPeople of Ohio support group (www.chiaripeopleofohio.org) and started Giving a Chance Foundation (currently in development - will help Chiarians seek second and third opinions when personal finances limit access).
We must somehow get others to stop referring to Chiari Malformation as "Arnold" Chiari Malformation. There is no such thing as Arnold Chiari Malformation. Afte...