Hey Gymbug:
I'm so sorry to hear that you're suffering.
It helps to keep a journal or a blog and your welcome to read mine if you want. Our situations have some similarities. It's a great way to review your situation objectively and identify patterns in your symptoms, medications and pain level. Hindsight is 20/20 and keeping a log might help you look at things more objectively over the longer term. Also, when you do go into Emergency, you can say, "This has been the pattern..."
You are not alone! Try to stay positive and reach out for support when you need it. Talk to your Doctor, family, friends, co-workers, church or social service volunteers or anyone you feel safe with.
Hang in there! It's got to get better, right?
All the best,
Sam