About Me: Female, 50, Racine, WI, member since Dec 2008
Mom with 15 year old son diagnosed with Chiari 1. He was dx'd at appx age 8 or 9, but doctor at that time stated it was "mild" and unless there were symptoms no need to treat.
[More] he has been active in football for several years and this year, he began high school wrestling. Now he is symptomatic and his recent MRI shows a 17 mm CM.
UPDATE - my son had decompression surgery in 2009. His symptoms improved for a time after surgery. He was approved by his NS to return to all sports, including wrestling, and shortly after began having some symptoms return. Over the last year or so, every time he's had a problem, the PCP (who was told by the NS that the Chiari was "fixed") said it was not chiari related because surgery fixed it. The NS was not responsive after the surgery. In February and March 2012, the symptoms grew much worse. He is now 18 and was at work, he began having balance problems and pressure in the back of his head. One night it was severe, and scary, he was having problems finding words, speech slowed and obvious difficulty talking, problems feeling like he couldn't walk right, legs felt like lead, and the head/neck pressure was horrible. Took him to ER at major hospital to be told it was, again, a migraine.
I then found a new NS at the University of Wisconsin-Madison, hospital and he is now being seen there. It is a slow process however, this doctor did NOT dismiss it as migraine, even though nothing shows on the MRI. If you'd like more info on the doctor, please feel free to contact me.
Back again....my son is now 22, working full time, and is having symptoms again. This is clearly a long term process!
i hope im doing this right im new to this but my sister had chiari surgery in chicargo and it was great. and the chiari institute in ny is cash ..no insurance accepted. my daughter has chiari too and those were her drs. shes looking for drs. with insurance also. hope this helped u . feel good
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