About Me: Male, 49, puyallup, WA, member since Dec 2008
Married 23 years with two kids - girl 19 (already bought her first home); and a boy, 17, going to Pierce Community College.
I have a hx of severe asthma, esp. as child
[More] w/hx of collapsed lungs. Been on corticosteroids for 42 years which has contributed to Addisons and multiple spine issues (stenosis, degenerative discs, etc.)
Had a full blown CVA (wet stroke) in 1987. Since then I have experienced transient symptoms such as uncoordinated body movement; ballistic movement; right sided weakness; foggy head; slurred speech and fatigue. Since these symptoms usually were not concurrent and were usually minor and went away within a day or two I did not pay much attention to them and plus my primary care guy said they were probably residual from my stroke.
Then in June of 2008 They began to appear more frequently and more severe, so severe in fact that by the 4th of July i was completely incapasitated (sp?) and ended up in the hospital.
They ran a whole battery of neuro tests (mri of brain and spine). I was released two days later slightly better but still deemed "homebound" by pt and ot, on more medication, prescribed home health services (nurse, pt and ot) with no official dx except "significant neurological deficiancies due to:
1. moderate to sever spinal stenosis leading to multiple nerve blockage
2. acute latent afffects of stroke
I am paraphrasing since I do not have the report in front of me.
Since then I have developed a neurogenic bladder, bowel incontinence, and blurred vision.
Recently I went to a new primary care doc and he said " I see you have MS". When I told him that although it had been suggested by my cardioligist I had never been dx'd with that. He went back through my records and discovered that one of the many neuro's I had seen had written that as, and again I am paraphrasing, "although patient has no apparent lesions at this time, unable to rule out MS".
Please, anybody out there with even somewhat similiar symptoms, diagnosed or not, get in touch with me. Seven months ago I was an extremely active 44 yr. old. Now I have to use an electric wheelchair to get around...However, I have an awesome wife, great kids, and still manage to be active, just in different way. I used to obsess about a final dx, and although I have not given up, I have started to live again.
Peace to all,
Hi Friend, I'm Vanessa, I'm living in Brazil right now, when I was DXD I was living in Massachusetts, on that time I had a big relapse, then I begun on tysabri and stay for 2 yrs. right now, I'm in Brazil, the sunshine here is a good source of vitammin D) , I'm not taking any medication for my MS, just some painkiller, I take Lyrica, it's a good one, but no interferon, thanks to God, I hate that medication, I hope you're feeling well and go to physical therapy if you need, because is helping me a lot. Take care, hugs. Vanessa
Thank your for reaching out to me and leaving me my first note :). Being in limbo land is very confusing and frustrating as I see you can understand also. I wish you the best of luck also. If I find anything I know will help you I will and hopefully you will do the same for me.
Be bold Mike.lol My moniker came from my nieces actually. When the one was little she couldn't say my name which is Monika, it came out Moka. Eventually she could say my name and I had forgotten about it. Then when she was 16 she asked if she could call me Moka again as she found it more endearing.lol Of course I said yes and then it turned into Moki. Then my other niece added the bear, so I then became Mokibear. So there you have it. heehee I hope your holidays are going well to Mike. Yes they are tiring but enjoyable non the less. Wishing you all the best in the New Year! Moki
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