Thanks for the reply. We're just taking it one day at a time right now. Thankful for how good things are. :)
Hope you have a great weekend! :)
Hello. I accidently found your profile when doing a google search for a medical condition my son has. Ironically, our son's are a lot alike. My son is only 6 1/2 but has the same level of spina bifida (L5 - S1). I'm interested to see how your son is doing. I hope he is well.
Last week we visited the sb clinic in orlando, fl...we go annually -- and it appears he has a teeny tiny bit of fat growing back (tethering) which we dreaded ever hearing about...and his bladder isn't contracting so he's wetting himself here and there. They're suggesting another spinal surgery to relieve the bladder but we're scared at this point. It's all fresh to us at the moment, just spoke to the doctor's on Friday.
Sincerely,
Vickie in Florida :)