About Me: Female, 53, NA, FL, member since Jan 2009
I am a positive person with a great attitude. With the exception of being ill, my life is wonderful. I am fortunate to have two wonderful kids and a great husband. I was very active until one day I woke up with a headache. That was almost five years ago and the pain is
[More] still there. Then, over the following months, more symptoms came. I've been diagnosed with MS, CFS and Fibromylgia but since no two doctors agree with another's opinion, I am uncertain about each diagnosis. I suffer with an intractable headache, extreme fatigue, earaches, dizziness, balance loss, blurry vision, joint pain, weakness, involuntary movements, limb pain and numbness. I desperately want to be well again; I want my life back. I recently read an "incidental finding" on a brain MRI which has me wondering if doctors have been wrong. There is something growing in my nasopharynx (cyst); it shows on every MRI since this started and it had grown. Doctors say it isn't the cause of my problems but I have my doubts. This cyst is on left the side; my pain is worse on my left side (with exception of blurry vision - that is worse on right).
I had a mri to check pinched nerves in my cervical neck and they accidently found the cyst. I have had a second mri with contrast and my doctor just made my appt. with the ENT. I am picking up the reports and cd from radiology tomorrow and I will know more. Can I get your doctors info? I would love for my ENT to be able to talk to yours to monitor your progress and compare with mine, it might help someone later. Thanks
I just found out I have a tornwaldts cyst. I have also had headaches in my lower left side for a couple of years. I do suffer from hearing problems in left ear and have felt tired alot over the past couple of years with alot of pain in random parts of my body. The cyst was found when they did an mri to see if i had a cervical pinched nerve. Now, the more i read about thornwaldts, the more I believe his is answering alot of problems i have had over the years. My doctor is sending me to an ent and i am scared that they will not know what to do for me.
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