Just a quick note to say hi! Hi Lisa, I just read your post on the Pediatric cardiology Forum and Dr. Jeffery's reply. My daughter also had LVH and so I just wanted to offer you help if you need it. I am also the Community Leader for the Pediatric Cardiology Forum which is there to support families. How is your son doing?
Ms. Lisa, I read your question and a diagnosis which I am familiar with as I care for many people with this diagnosis is pulmonary hypertension or high blood pressure in the lung. She shoud have an echocardiogram to assess her Right heart. Go to this website www.phaassociation.org for more information. You can also watch an episode of mystery diagnosis about this diagnosis on the Disoverychannel website. You are in the right place to have her evaluated for this at UCSD they have an excellent program. Good Luck to you
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