About Me: Female, 51, Aurora, CO, member since Jan 2009
I am in between knowing if I have MS and not..I just want to know to know one way or another. Last May I went blind in left eye and had no idea what happened. I just thought it was a bad headache that would go away..after two days and my vision didnt come back I went
[More] first to optomitrist...who after 2 hours said I think you might have a brain tumor..okay..then next day went to Opthamologist and he said NO brain tumor but he did see scaring (I guess somewhere in the eye) And was then diagnosed with Optic Neuritis,Retububar and he sent me to the ER for immediate MRI and Neuro follow up...well they were to do it with dye (I don't know if it make a difference if MRI was done with contrast or not) but it came back negative. Dr. Really thought I still had MS...Neurologist did Follow up and he did another spinal MRI...negative again..wanted to follow up with LP..not hot on that idea...but still not sure. So, I am not positive if it's MS or not...I want to be proactive if it is...if not I want to know...I am looking for answers...is it normal for face to be numb, to go numb...walk around and fall in my own house...I don't know...All other blood work was negative. Am I crazy? Can you have MS and no brain lessions? Or would they possibly not shown w/o contrast? I have COPD/ on oxygen, and its not a dxs I want I just don't wnat to be confused anymore...any help would so greatly be appreciated. Also, I got intimtated at the Neuros office and when he asked questions that was embarrassing I didnt aswer him because I was too embarrased...I just don't know what to do. I don't have a lot of choices of who I go to...I have an HMO...any help will be cherished....thanks Michelle
Just a quick note to say hi! I'm wondering where you are? I know you're very tired, but I'd sure like to hear what point you're at in your testing. I technically had retrobulbar neuritis instead of optic neuritis too--even back in 1973. If you wan to be aggressive in your testing then I suggest you do get a LP--it may tell much more than without it. They are so much less painful now because they use a very thin needle. You'll be fine, I think. Plus--you want to know all you can. Let me hear from you. Hugs, Jane
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