About Me: Female, 42, Burleson, TX, member since Feb 2009
I have had 3 spinal surgeries. The first was an anteriorlateral fusion from L4-L5-S1. They used cadaver bone graft and cages between the levels. It fell apart. The second one was a left hemilaminectomy at L5 to take away scar tissue that had built up around the exiting
[More] nerve root that caused a radiculopathy at L5. The third one was to correct the first one-a posterior fusion with rods and screws from L4-S1. I now have hardware pain that can get pretty unbearable. For some reason the fusion only took at the L4-L5 area. It does not want to fuse between L5-S1. There is still movement in that area and will not fuse, causing pain in that area. The hardware shows lucency around the screws. I was told the hardware needs to come out and be replaced and refused again. I am terrified to have another surgery. I went through too much pain the last time. The doctors do not understand that when you have been on opiods for so long that after the surgery I need a higher dose than a normal person needs to control the pain. I was in hell for a good week after the last fusion. The pain was nothing like I have ever felt before, I wanted to die. I can't put myself through that again. I need another surgery to help this hardware pain, but am too scared to go through what I went through. The original pain is much better, the leg pain is all but gone and no more shooting pain down the legs and into the feet. Now the pain comes with weather changes and if I am on my feet too long. I would be fine if I never had to stand that much or stay in the same sitting position for any length of time. I started having problems 13 years ago when I was 21. I had days where I could not even sit up or walk. It is much better now, but it took years to get better. I have spodylolisthesis at L5 over S1.
"When is your appt with the team? Make sure when you go see them you ask what they will do for pain control. And then ask what they will do if the "normal" measures for pain control doesn't work. For instance they may put you on a PCA pum..."
"It should help with the demyelinating disease. When you have that your nerves tend to go haywire and fire off at will. It will send pain signals for no apperant reasons and your doctor may be thinking this is where your headaches are com..."
Thank you, i really appreciated your answer and description - you actually made it sound beautiful haha - but i see your journey - maybe i'll be a bit more accepting of it all. i know i'm grouchy so thanks for responding
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