About Me: Female, 51, Henderson, KY, member since Mar 2009
I have Medullary Sponge Kidney Disease, chronic pain, chronic kidney stones, migraines, sleep apnea, depression, etc.
I love my pets which I have 1 horse, a doberman & a
[More] Yorkshire terrier & a cat.
There is not a lot out there about MSK. Most of what I have learned that has helped me has been from other MSK sufferers. Word of mouth of what works for some people, a procedure someone read about. We are just now discovering Vit. D may play a big part in the pain we endure. That is just from one person mentioning they had low Vit. D and others asking to be tested, now several of us found out we have low Vit. D and have improved on Vit. D supplements. I am still waiting to go for my vit. d test. The standard medical belief is MSK is relatively benign. Well, that is not the case for the people that we hear about. I guess the people suffering are the ones looking for help, the ones with benign MSK don't search out help, they don't need help.
Welcome! Come on over to the Medullary Sponge Kidney community! I am the CL there. We all have MSK and have similar issues to you. We get ideas and support from each other.
And we believe that MSK does cause pain!
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.