About Me: Female, 50, Henderson, KY, member since Mar 2009
I have Medullary Sponge Kidney Disease, chronic pain, chronic kidney stones, migraines, sleep apnea, depression, etc.
I love my pets which I have 1 horse, a doberman & a
[More] Yorkshire terrier & a cat.
There is not a lot out there about MSK. Most of what I have learned that has helped me has been from other MSK sufferers. Word of mouth of what works for some people, a procedure someone read about. We are just now discovering Vit. D may play a big part in the pain we endure. That is just from one person mentioning they had low Vit. D and others asking to be tested, now several of us found out we have low Vit. D and have improved on Vit. D supplements. I am still waiting to go for my vit. d test. The standard medical belief is MSK is relatively benign. Well, that is not the case for the people that we hear about. I guess the people suffering are the ones looking for help, the ones with benign MSK don't search out help, they don't need help.
Welcome! Come on over to the Medullary Sponge Kidney community! I am the CL there. We all have MSK and have similar issues to you. We get ideas and support from each other.
And we believe that MSK does cause pain!
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