Just a quick note to say hi!
hi hope you recover well, my new born baby has it an im looking for more information about it, my e-mail address ershad.***@****
Hi
I am a 38 year old female with SB. I also walk but with the aid of leg braces. Over the last four years my back pain has bee getting progresivly worse. I am now seeing a pain management Doctor and he seems to help. In the last three years my heels have developed pressure ulcers and I am seeing a wound specialist to help with those. hope we can start to talk and get more of us adults out there to comunicate with. The medical interest seems to be geared toward the chidren with SB. We need to get more information on what happens as people age with SB.