Hello Laura,
I have Mitochondrial depletion Syndrome and my 14 year old son was just diagnosed with a mitochondrial disorder. It sounds as though we have had many similar experiences and I would love to chat sometime. I have always been good at maintaining my sense of self when I was up against physicians that dismissed my diagnosis, but now that this is about my son it is a whole different ball game. Anyone out there that would like to offer ideas, education, support. I am so willing.
Most sincerely,
Kerry
Just a quick note to say hi! Please contact me at . I am an adult with a number of years experience and contacts with Mitochondrial disorders. Jean