My son who is 33 with OI just went throught the opersation at Howard University Hospital had 2 heart valves replaced on the 22nd via emergency surgery. He's still in recovery today. We didn't know that OI could effect the heart...we have type 3? with the blue sclara and haven't had fractures in probably 28-30 years and thought we were out of the woods. But we are just turning the corner.
INTERPRETATION OF MY ECHO TEST.
Mild Left Ventricle Dilation
Mild left ventricle systolic dysfunction, ejection fraction 50%
No aortic regurgitation/aortic stenosis
Right Heart is normal
No pericardial pathology
Not sure how to provide info--60 year old male--PACs for 18 years--latest holter saw "high frequency PACs"--I experienced as many as 15/minute for several hours--slowing down eventually to 5 or 6/minute--Even with "high frequency" judged to be completely benign. Cardiologist recommended Slow-Mag (magnesium supplement)-- PACs reduced to one or two/hour within a day. May be coincidental but a data point nontheless. My history is that PACs come on, stay for weeks or months, then disappear for months. As I get older PACs get more frequent but never debilitating other than psyche damage-lol. Hope this helps somebody. ***@****
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