Just a quick note to say hi Joyful! You are an inspiration to me!! Tough-minded! A survivor!! Sorry you're having a bad time now and that you aren't getting much sleep. Does something happen when you sleep that makes you afraid to sleep? I recently had my muscle biopsy and was miserable, throwing up afterward, unable to eat or drink for a couple of days, likely from the pain med. Now feel better. Hope to get an answer from the muscle biopsy - as in it's positive for IBM or something. I need to know what is attacking my body. Then I could have more peace of mind. Sounds odd, eh? The surgeon was groping around for thigh muscle before the surgery - he said I don't have that much muscle left there. What - am I going to have to become a visible skeleton before I get any answers??
Thank you for the card - it brightened my day. Hope you are doing ok today. Love ya
Just a quick note to say hi! I read your profile about your struggles with Mitochondrial disease. I'm so sorry to hear that it isn't really treatable in an effective way. You are a survivor--I''m glad that you are here!
Just a quick note to say hi! thanks for inviting me to join.