About Me: Female, 42, clarksburg, WV, member since May 2009
I AM 39 HAVE HAD MS SENCE I WAS 16 MY MOM HAD MS TO AND MY GREAT GRANDMOTHER ON MOMS SIDE MY AUNT ON DADS SIDE HAD IT TOO THEY ARE ALL DEAD DO TO MS COMPLACATIONS BUT ENOUGH ABOUT THAT I HAVE 4 GIRLS 17, 15, 7, AND 4 1/2 ALL ARE MY PRIDE AND JOYS
17 YEAR OLD SO SMART ITS SCARY SHE WRITES ALL KINDS OF SHORT STORYS 15 YEAR OLD IS MY ARTIST CAN DRAWL ANYTHING 7 YEAR OLD BIZY BEING 7 AND VARY SMART TOO
AND THINKS SHE IS A PRINCESS LOL AND SHE IS MOST OF THE TIME IF YOU KNOW WHAT I MEAN AND MY 4 1/2 OLD IS WAY TO SMART TO BUT HER BODY LETS HER DOWN SHE HAS MYOSITIS OF THE BODY , C.P. , M.D. ,SHE HAS LEGG BRACES TO WALK WE DO OT/PT SPEECH AND WATER THAROPY ON A DAY TO DAY OR WEEK TO WEEK BASES GROSS MOBILE DELAYS , SENSERY PROBLEMS ( CANT FEEL PAIN ), AND MILD M.R. ,
ON GOOD DAYS I CAN PICK HER UP ANY TIME I WANT AND THATS OFTEN BUT ON BAD DAYS I JUST LAY AND PLAY WITH HER AND MY OTHER GIRLS WE HAVE CIRCLE TIME / FAMILY TIME I DO OT/PT TOO BUT THAT TAKES A LOT OUT OF ME AND THE PAIN IS SO BAD I COULD CRY AND I DO MOST OF THE TIME (IN THE BATHROOM AWAY FROM THE GIRLS OF COURSE)
BUT THE SCARRY PART OF MS IS THAT MY GRILS WILL HAVE TO TAKE CARE OF ME LIKE I TOOK CARE OF MY MOM THAT STARTED WHEN I WAS 7-13 YEARS OF AGE BUT I REALY DID MIND I JUST DONT WANT MY GIRLS DOING THAT FOR ME THEY NEED TO BE KIDS NOT ADULTS WELL THATS ALL I HAVE TO SAY ABOUT ALL THIS OR ILL BE IN THAT DARK PLACE THAT WE ALL GO SOME TIME
BYE FOR NOW BE WELL AND LAUGH A LOT IT HELPS EVEN IF IT IS AT YOUR SELF MOST OF THE TIME .
AND REMEMBER WHEN THE FLOOR RUSHES UP TO MEET YOU AND PEOPLE SEE IT JUST LAUGH AND SAY JUST CHECKING TO SEE IF THE FLOOR IS CLEAN LOL AND ALWAYS SMILE LET THEM THINK YOUR UP TO SOMETHING EVEN WHEN YOUR KISSING THE FLOOR
AND ALWAYS TAKE A LUNCH ON THE MS TRAIN RIDE WE CALL LIFE NEVER KNOW WHERE THE TRAIN WILL SPIT YOU OUT IT MIGHT JUST BE A PLACE YOU WONT TO PULL UP A CHAIR OR FLOOR AND BRAKE OUT THE POP,COFFEE,WATER,OR WINE AND RELAX.
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