About Me: Female, St. Michael, MN, member since Jul 2014
3 years of neurological symptoms, progressively getting worse..STILL in limbo.
The mystery continues...is it a syrinx or not...scheduled my 3rd C spine within 6 months for clarification...crazy!!
Limbo Land continues...repeat C spine MRI in October to determine if what they saw in June on the MRI was an artifact, a syrinx, or a lesion. I can not believe the craziness of this all!
"I'm so very sorry that she has left this place; she left it with grace, bravery, love and kindness. She will not be forgotten as even these days when I hear the name "Alex" or reference to "Hvac"...she immediately comes to mind...I fe..."
"Welcome and sorry that you're here! Limbo land is a terrible place to be, I've been living it for 2 and half years now. How long have you been having symptoms? What kind of neurologist is following you? Why did you have 2 (yikes!) LP..."
Definitely OK to pack up the winter garb!! I'm struggling along over here. I don't post too much as I feel all I have is a pile o'negativity right now. Not helpful for ANYONE. Drop me a line & let me know how you are doing. I've been thinking about you.
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