About Me: Female, 46, Loveland, OH, member since Jul 2009
I have two very young children and recently I have been having issues that sent me to a neurologist and he DX me with Parathesis, Chronic Fatigue Syndrome, depression and testing to rule out MS. Recently went to an ENT for swallon Lymphnodes in the Parotoid and ANA and
[More] Lip biopsy came back positive for Sjogrens Syndrome. Was sent to Rheumatologist and diagnosed with Fibromyalgia. Rheumy will run more test to rule out Lupus. I have anemia, and Vitamin D defincency. Being retested for Vitamin B6 and B12 they were borderline. Have an appointment to see Dermatolgist to rule out Scleroderma.
You're in my thoughts all the time, but especially today. I have been having various different tests for about 4-5 years like MRI's, accoustic tests, balance tests etc, but it wasn't until last December when I finally got hold of my current neuro that the nitty gritty tests started, so this time it has taken about 9 months to get a confirmed diagnosis of Mitochondrial disease.
Hope you are coping well with everything that is happening to you and keep your chin up, no matter how hard it seems at times. Cheers bearsmum - Nancy xxxxxxxxxx
My ANA was 120 the first time and 6 months later it was 640, now 6 months later it's negative I never had a pattern resulted. My SSA was 220 the first time, second time 640 and now negative. SSB was 340 first time, second time negative and 3rd time now negative. Right now the only lab test elevated was C4 which is indicative of inflammation of Lupus.
Sjogrens,Lupus, Parkingsons,Diabetes, all these are autoimmnue disorders/diseases. All can be hereditary. My mother had Scleroderma and died from complications from it after 15 years this past July. My sister has Fibromyalgia.
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