Hello there,
Just requested you as a friend. Wondering how things are going after your treatments.
Just a quick note to say hi! Hello,
in response to your question, the MRI does say that the right Cerebellar tonsil extends below the Foramen Magnum also listed as Low Lying Cerebellar Tonsils. The good thing is, there is no Syrinx or syringomyelia. I have already seen a Chiari Specialist and neurosurgeon Dr. Dan Heffez at the Wisconsin Chiari Center. I had other tests done at home to rule out other causes of my symtoms. I am just gathering all of my tests and exams to Dr. Heffez so hopefully they will procede with decompression surgery because these symptoms are HORRIBLE! Especially when standing up!!!!
Just a quick note to say hi! Also, I use to live in Ocean Pines before coming back to the DC area. I was suppose to go down to the shore yesterday, but have put off my trip till after taxes are done. My god-children 1st lived where youdo and now are in Gumboro. Maybe we can meet when I go down again or when I go down for the oldest godchild's graduation from high school?
I felt totally alone when living down there because there were no others that had ACM, let alone know about it.
Have a great week!
verdenango
Just a quick note to say hi! and to see how you are doing, have you had your op yet and how are you doing, I love your input on the forum and have missed not having you around.
Take care
Hugs
Niki xx x