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997898?1260762198
Mood: n40066
is missing her buddy!
About Me: Female, 48, selbyville - DE, member since Aug 2009
Recently diagnosed with cniari malformation 1 @ 1 cm.  Have had many symptoms ever since 2001 when I was involved in a plane crash.  I was diagnosed with RA, bursitis, acid reflux and fibromyalgia in 2004, Bachetts Disease in 2006 and now Chiari malformation1.  I've bee ... [More] n a busy girl for the past few years, huh?  :) And all this before the age of 48!  (can't wait to see what 50 has to offer!)  I have spent the past week studying everything I can find and believe that many of my symptoms belong to the Chiaris more than anything else.  Have had a brain MRI and neurophsyc exam so far.  Have not heard a word from the neurologist yet...(my RA dr. emailed me the results of the MRI).  I am assuming he will contact me to have a full spinal MRI this week.  

SYMPTOMS:  starting from 2001 thru current
back pain, T7,8 and 9 9 (from plane crash)
back pain  L-5, S-1
early onset menopause
pain in c spine
non stop ringing in my ears
severe pain near brest bone while eating...food gets "stuck"
diagnosed with acid reflux
extreme fatigue
arthritis flare ups in fingers, wrists, elbows, toes
diagnosis of RA and fibromyalgia
random pains in legs and arms
terrible neck pain
tingling in scalp
severe speradic attacks of intense itching on arms and legs
spasms in eyes and neck
many severely painful hip flare ups
diagnosed hip flares as bursitis
depression
loss of interest in everything
weight gain of 30 lbs.
loss of sex drive
headaches originating at the base of my skull and sometimes behind my eyes
memory (short term) loss getting gradually worse
difficulty getting my thought from my brain to come out of my mouth
studdering sometimes
speradic palpatations
full feeling in my head
sensitivity to light
numbness from the base of my scull to just below my shoulder blades
extreme dry skin/ breaking out on my arms and legs (never had bad skin in my life!)
dizzy
occasionally unstable on my feet
bottoms of feet are callused badly in some places and so dry they are cracking on the outside of my heals and big toe
difficulty concentrating or retaining things I have recently read. [Less]
Interests: Fibromyalgia, Arthritis, back pain, Pain, Chronic Pain, Migraines, Rheumatoid Arthritis, Headache  
I'M BAAACCCKKKK!!!
Dec 17, 2009 10:46PM in the Chiari Malformation Community
it's all in the breeding, little leppy, it's all in the breeding! since ma's not around, i'll let you come out of your r...
Time off work post-surgery
Dec 17, 2009 10:32PM in the Chiari Malformation Community
i agree with selma! take as much time as you can get and if you don't need it all, great! but if you need more, then by...
lumbar and thoracic spine MRI?
Dec 16, 2009 11:53AM in the Chiari Malformation Community
rosemarie...i'm so glad you took that information a step further. i had hopes that you would! congrats. on making a dec...
No journal entries
No Sleep Tracker.
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soccero
Dec 15
Just a quick note to say hi! No I didn't talk to my dr but I am going to Hopkins Monday for a new dr so I will talk to them soon. I went back to school for 2 weeks and out of those to weeks I was there for 5 days and I felt bad so I'm back at home and I am glad u r feelin better Molly
soccero
Dec 14
Just a quick note to say hi! No I didn't hit my head just whiplash but a person made a u turn without looking and tboned us and of course I was on the passengerside but I'm ok. How r u
rod44
Dec 13
Hi Elizabeth, we are ok, Anne is going for a Colposcopy on Tuesday and I am due to meet the Radiologist NS & NL on Monday to see what they plan to do for me.....looking forward to Christmas lol so not doing so bad, it is good to have you back here :) Ray
soccero
Dec 02
Just a quick note to say hi! how r u ? r u feeling better? im so glad its behind you! molly
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selmaS
Female, Allentown - PA
chadry
Female
marmar0515
Female, 44, Ravenna - OH
ChiariWolf
Male, 48
soccero
Female, 16, germantown - MD
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