Based on what you have said so far...I would schedule an appointment with a developmental specialist. (If you don't have someone in your area listed as a developmental specialist, you should be able to see a neuropsychologist who will do similar testing.) S/he can check for a number of different things. The stemming is something that a lot of autistic children do. If there is some sort of developmental issue, it is better to find out about it now rather than later. My husband has Asperger's and didn't find out until he was in his thirties. He really wishes he would have known sooner.
In addition to the developmental specialist, I would ask the pediatrician to do some routine blood work (CBC, tests for liver and kidney issues, etc.) and include in that the magnesium and potassium levels. If you can't get him/her to do it, the developmental specialist might be willing to.
Those are both very helpful to me, thank you! I have no idea what to do though. Do I find a behavioral specialist or a therapist to take her to? And for the magnesium and potassium def. would I just request a blood test from her doctor? That actually makes sense because my whole life i have had a potassium deficiency. I have also done some of my own research and alot of what i have read has pointed to stemming. Which i guess is in relation to autism but isnt actually autistic. That also sounds alot like what it could be too. So i really just have no idea and i am hoping by being on this sit i can get alot of feedback and hopefully get to the bottom of this ongoing issue! Its not involuntary though! She knows when she is doing it. Its like she does it more when she is tired or wants something. As soon as i give in to her she quits the tensing. She is otherwise very advanced for her age so i just do not know what else to do. Its at the point where i cant get the drs to listen anymore and i just want answers!
As I started reading this, it definitely sounded like seizure activity to me. I had a few febrile convulsions as an infant and then have had a seizure disorder for the last 26 years. However, if it was seizure related, it should have shown up on the EEGs. Kids do some strange things during tantrums so, since the EEGs were normal, it is probably just behavioral.
It might be nothing to worry about.
Otherwise, it could be a deficiency in magnesium. Both magnesium and potassium are important for proper muscle and nerve function.